Financial incentives for participants in health research: when are they ethical?

Tania Manríquez Roa; Nikola Biller-Andorno

doi:10.4414/SMW.2022.w30166

Viewpoint

Vol. 152 No. 1112 (2022)

Financial incentives for participants in health research: when are they ethical?

Tania Manríquez Roa
Nikola Biller-Andorno

DOI: https://doi.org/10.4414/SMW.2022.w30166
Cite this as:: Swiss Med Wkly. 2022;152:w30166
Published: 16.03.2022

References

World Medical Association. World Medical Association Declaration of Helsinki: ethical principles for medical research involving human subjects. JAMA. 2013 Nov;310(20):2191–4. https://doi.org/10.1001/jama.2013.281053
Council for International Organizations of Medical Sciences (CIOMS). International ethical guidelines for health-related research involving humans. Geneva: CIOMS; 2016. 122p.
Swiss Federal Act on Research Involving Human Beings. Art. 14 Non-remunerative participation, https://www.fedlex.admin.ch/eli/cc/2013/617/en
Gelinas L, Largent EA, Cohen IG, Kornetsky S, Bierer BE, Fernandez Lynch H. A Framework for Ethical Payment to Research Participants. N Engl J Med. 2018 Feb;378(8):766–71. https://doi.org/10.1056/NEJMsb1710591
Resnik DB. Bioethical Issues in Providing Financial Incentives to Research Participants. Medicoleg Bioeth. 2015 Jun;5:35–41. https://doi.org/10.2147/MB.S70416
Gopichandran V, Luyckx VA, Biller-Andorno N, Fairchild A, Singh J, Tran N, et al. Developing the ethics of implementation research in health. Implement Sci. 2016 Dec;11(1):161. https://doi.org/10.1186/s13012-016-0527-y
Sandel MJ. What Money Can't Buy: The Moral Limits of Markets. New York: Farrar, Straus and Giroux; 2012.
World Health Organization (WHO). Ethics in Implementation Research, Facilitator's Guide. Geneva: WHO; 2019. 172p.
Hoskins K, Schmidt H. Breastfeeding, personal responsibility and financial incentives. Public Health Ethics. 2021 Nov;14(3):233–41. https://doi.org/10.1093/phe/phab020

Publication image

How to Cite

1.

Manríquez Roa T, Biller-Andorno N. Financial incentives for participants in health research: when are they ethical?. Swiss Med Wkly [Internet]. 2022 Mar. 16 [cited 2024 Nov. 23];152(1112):w30166. Available from: https://smw.ch/index.php/smw/article/view/3177

This work is licensed under a Creative Commons Attribution-NonCommercial-ShareAlike 4.0 International License.

Most read articles by the same author(s)

Giovanni Spitale, Andrea Glässel, Mirriam Tyebally-Fang, Corine Mouton Dorey, Nikola Biller-Andorno, Patient narratives – a still undervalued resource for healthcare improvement , Swiss Medical Weekly: Vol. 153 No. 1 (2023)
Margrit Fässler, Verina Wild, Caroline Clarinval, Alois Tschopp, Jana Alexandra Faehnrich, Nikola Biller-Andorno, Impact of the DRG-based reimbursement system on patient care and professional practise: perspectives of Swiss hospital physicians , Swiss Medical Weekly: Vol. 145 No. 0708 (2015)
Sophie Gloeckler, Nikola Biller-Andorno, Mental health services in the metaverse: potential and concerns , Swiss Medical Weekly: Vol. 153 No. 4 (2023)
Verina Wild, Fourie Carina, Regula Frouzakis, Caroline Clarinval, Margrit Fässler, Bernice Elger, Thomas Gächter, Agnes Leu, Rebecca Spirig, Michael Kleinknecht, Dragana Radovanovic, Corine Mouton Dorey, Bernard Burnand, John-Paul Vader, Jean-Marie Januel, Nikola Biller-Andorno, The IDoC group, Assessing the impact of DRGs on patient care and professional practice in Switzerland (IDoC) – a potential model for monitoring and evaluating healthcare reform , Swiss Medical Weekly: Vol. 145 No. 0708 (2015)
Tania Manríquez Roa, Markus Christen, Andreas Reis, Nikola Biller-Andorno, The pursuit of health equity in the era of artificial intelligence , Swiss Medical Weekly: Vol. 153 No. 1 (2023)
Julian W. März, Tania Manríquez Roa, Bettina Schwind, Nikola Biller-Andorno, Monkeypox, bioethics and the LGBTQI+ community , Swiss Medical Weekly: Vol. 152 No. 4344 (2022)
Helena Hermann, Manuel Trachsel, Christine Mitchell, Nikola Biller-Andorno, Medical decision-making capacity: knowledge, attitudes, and assessment practices of physicians in Switzerland , Swiss Medical Weekly: Vol. 144 No. 4142 (2014)
Matthew J. Kerry, Thomas Volken, Nikola Biller-Andorno, Andrea Glässel, Markus Melloh, A Swiss digital Delphi study on patient-reported outcomes , Swiss Medical Weekly: Vol. 153 No. 11 (2023)
Ana Rosca, Tanja Krones, Nikola Biller-Andorno, Shared decision making: patients have a right to be informed about possible treatment options and their risks and benefits , Swiss Medical Weekly: Vol. 150 No. 2728 (2020)
Regula Ott, Christian Lenk, Nicole Miller, Rachel Neuhaus Bühler, Nikola Biller-Andorno, Neuroenhancement – perspectives of Swiss psychiatrists and general practitioners , Swiss Medical Weekly: Vol. 142 No. 4748 (2012)

1 2 > >>

[1] World Medical Association. World Medical Association Declaration of Helsinki: ethical principles for medical research involving human subjects. JAMA. 2013 Nov;310(20):2191–4. https://doi.org/10.1001/jama.2013.281053

[2] Council for International Organizations of Medical Sciences (CIOMS). International ethical guidelines for health-related research involving humans. Geneva: CIOMS; 2016. 122p.

[3] Swiss Federal Act on Research Involving Human Beings. Art. 14 Non-remunerative participation, https://www.fedlex.admin.ch/eli/cc/2013/617/en

[4] Gelinas L, Largent EA, Cohen IG, Kornetsky S, Bierer BE, Fernandez Lynch H. A Framework for Ethical Payment to Research Participants. N Engl J Med. 2018 Feb;378(8):766–71. https://doi.org/10.1056/NEJMsb1710591

[5] Resnik DB. Bioethical Issues in Providing Financial Incentives to Research Participants. Medicoleg Bioeth. 2015 Jun;5:35–41. https://doi.org/10.2147/MB.S70416

[6] Gopichandran V, Luyckx VA, Biller-Andorno N, Fairchild A, Singh J, Tran N, et al. Developing the ethics of implementation research in health. Implement Sci. 2016 Dec;11(1):161. https://doi.org/10.1186/s13012-016-0527-y

[7] Sandel MJ. What Money Can't Buy: The Moral Limits of Markets. New York: Farrar, Straus and Giroux; 2012.

[8] World Health Organization (WHO). Ethics in Implementation Research, Facilitator's Guide. Geneva: WHO; 2019. 172p.

[9] Hoskins K, Schmidt H. Breastfeeding, personal responsibility and financial incentives. Public Health Ethics. 2021 Nov;14(3):233–41. https://doi.org/10.1093/phe/phab020